
My PCS Timeline
Below are all of the details of my recovery so far. Please leave any questions below or contact me! I’m determined to make a full recovery and am excited to share whatever path it takes me to get there.
Full Recovery Timeline (so far!)
Relevant Health Pre-Injuries: Lifelong soccer player with no diagnosed concussions but I presume minor ones, collegiate rower which got me in great shape but I do not think did any great wins for my spine, whiplash from a swing incident in Costa Rica after college (don’t do stupid things), acne from middle school until this year (!!) that I see as a reflection of my body’s over-inflammation….and perhaps more.
Date of Injury 1: 02/2019
Injury 1: Jumped off a cliff into the water in South Africa (again, stupid things), compress fractured my T5 upon impact, had a lot of bruising all the way down my back and the back of my legs
Action taken after Injury 1:
- After a few days, got an xray confirming fracture in South Africa
- A month later, got an MRI that showed no further damage in Morocco
- Two months later, saw a chiropractor in Spain that did nothing except further hurt
- Travelled the world (literally, 5 continents) for the rest of 2019 with soreness but not severe ache, and lots of anxiety
Date of Injury 2 (the PCS-inducing one): 01/2020
Injury 2: Got hit by a car while riding a bike in Mexico, driver was going fairly slow but T-boned me, I landed on my left shoulder and hit my head behind my left ear, no loss of consciousness, did not seek care in Mexico
Action taken after Injury 2:
- 02/20
- Xray that showed compression but no fracture at T5
- Orthopedist visit that suggested PT and MRI
- PCP said my sinuses were dry and to try nasal spray (sorry but lol)
- 03/20
- Travelled to Portugal, then back because of COVID and not feeling well at all
- Telehealth appointment suggested I had Post Concussion Syndrome
Symptoms: felt out of it, intense headache on the bridge of my nose, fatigue, still exercised regularly, on the verge of tears all the time, and though I didn’t realize it at the time, very off-centered
- 04/20
- Started seeing a naturopathic doctor (have seen her weekly since)
- Began anti-inflammatory diet: removed gluten (had already 3 years prior), dairy, corn, alcohol, processed foods and most sugar
- Added daily vitamin D, vitamin B, magnesium supplements
- Started going to Physical Therapy for neck and back (went weekly until mid-Oct)
- Started seeing a psychotherapist to help with the anxiety (have seen her weekly or biweekly since)
Symptoms: worst they ever got, woke up feeling like the world was spinning, neck and back muscles totally locked and a lot of pain in my neck, lots of pressure around my eyes, discomfort sitting, standing, and laying down, felt in a constant panic
- Started seeing a naturopathic doctor (have seen her weekly since)
- 05/20
- Tried a holistic chiropractor that I am not convinced was doing anything
Symptoms: much the same, reduced pressure around eyes, more aware of how much trouble I had with my position in space
- Tried a holistic chiropractor that I am not convinced was doing anything
- 06/20
- MRI on brain and spine that showed ‘normal spine with compression at T5’ and ‘age appropriate brain
- New chiropractor tried dry needling, did NOT go well. Too much, too soon
Symptoms: continued panic, lots of angry and sad rants, neck pain, very tired but trouble sleeping, and trouble focusing mentally and physically (my eyes were all over)
- 07/20
- Saw a concussion-specific Physical Therapist in Vermont (on vacation) that guided me in the direction of vision exercises and adding back in cardio activity
Symptoms: much the same, heightened awareness of heart rate increases spiking symptoms and dizziness upon standing from sitting
- Saw a concussion-specific Physical Therapist in Vermont (on vacation) that guided me in the direction of vision exercises and adding back in cardio activity
- 08/20
- Got a series of tests done including EBV, metabolic panel, Lyme. Whatever my primary care would order
- All test results were in normal ranges except EBV antibodies which were very high
- Started celery juice cleanse per my naturopathic doctor’s recommendation to start addressing possible EBV reactivation (have been drinking every morning since)
- Met with a neurologist, after recommendation from my PCP, who wanted to prescribe me Topamax for nerve pain and migraines. I declined and opted to try Vitamin B per his recommendation instead (which I was already doing)
Symptoms: constant headache, neurofatigue, slightly less anxiety, less pressure in head and neck, muscles no longer locked and with increased flexibility
- 09/20
- Did a 3 day intensive at the Concussion Center of MA that helped realign my vision and vestibular systems
- Did daily brain exercises per that intensive to continue the training (have since stopped)
Symptoms: no more vision or vestibular troubles!, increased tolerance for activity, continued upper cervical tension, neurofatigue, and just feeling out of it
- 10/20
- Did 3 sessions (once a week) of PEMF therapy with a new chiropractor. It helped with neck pain but seemed to overwhelm my body with other toxins.
- Had a telehealth appointment with primary care for more tests. She couldn’t order any testing that I wanted and denied food and hormones being a factor.
- Had appointment with a more functional medicine-type doctor and got tested for Heavy Metals (had an elevated Thallium level) and Food Sensitivities (found out I have an allergy to sesame)
- Switched to paleo/keto, low-carb diet and added in chlorella supplement
Symptoms: much the same, increasingly irritated and hopeless, more apparent ringing in ears
- 11/20
- Sought answers from another naturopathic doctor about mold, hormones, and specific nutrient deficiencies. Did not end up going through with the testing because after talking it through, I was already taking a lot of the steps that would be needed to address those imbalances.
- Will reach back out if other steps don’t solve issues
- Began using a red light at night to wind down after the day
Symptoms: much the same but I thought I narrowed it down correctly to spinal alignment issues, remains to be seen
- 12/20
- Found new chiropractor and made 6 month plan for correction, starting at 3 times a week
Symptoms: neurofatigue, brain fog, ears ringing, digestion troubles, constant headache and body achiness, irritable and anxious, still not consistently driving
- Found new chiropractor and made 6 month plan for correction, starting at 3 times a week
- 2021
- Continue work with chiropractor and naturopathic doctor, complementing with regular exercise, same diet, limited screen time, and detox techniques
My Essential Practitioners (of the 19 I've seen)
- Naturopathic Doctor, Balance Point
- Chiropractor, Cornerstone Family Chiropractic
- Therapist
- Functional Neurologist, Concussion Center of MA
- Mentors and Community, Concussion Compass
- Physical Therapist, Professional Physical Therapy (though not well-versed in concussion and would probably choose one from Complete Concussions)
Daily Routine Essentials, for me
- Plant-based, whole food, anti-inflammatory diet, very little grains or complexity
- At least 64 oz of water or herbal tea
- Vitamin B Complex
- 2,000 IU Vitamin D
- 400 mg Magnesium
- Fish oil for omega 3s when not enough in diet
- 16 oz of celery juice before any food
- Light exercise (e.g, 20 min run/walk followed by stretching)
- Work (I work full time remotely)
- Regular use of blue light filter glasses
- Ergonomic pillow and work setup
- Meditation and deep breathing even if just for a few minutes
- Lots of time outside and away from screens
- Jin Shin Jyutsu therapy on myself to help calm neck and gut
- Lymph drainage with my hands and a tuning fork
- Nightly red light therapy on head, neck, and back
- Epsom salt baths, a bonus
The Therapies/Interventions I've tried
(*my favorites)
- Physical Therapy exercises/stretches
- Orthobionomy
- Cranial Sacral Therapy*
- Lymph Drainage*
- Jin Shin Jyutsu*
- Interactive Metronome
- PEMF on neck and back
- Stim on neck
- Transcranial Electrical Stimulation on cheek and tongue*
- Vielight*
- Normal chiropractic adjustment*
- Dry needling
- Arnica tablets and cream
- Oil pulling
- Skin brushing
- Chlorella for cleansing gut
- Celery Juicing*
- Exercise intolerance training
- Vision tracking exercises
- Epsom salt baths
- Emotional Freedom Technique
- Sophia Flow lymph drainage cream
- Turmeric supplements
- CBD- very briefly, had a harsh reaction
- Red Light Therapy*
Symptoms I've Experienced
- Brain fog
- Headaches- started at the bridge of my nose, migrated to the top of my head, then the back, then eventually to my neck and away. Occasionally shooting pains.
- Neck and upper back tightness and at times, pain
- Eye tension/pressure and eye floaters
- Derealization
- Exercise intolerance
- High anxiety and at times, depression
- Trouble in social situations, focusing, thinking at all
- A feeling that energy would rush to my head and not leave
- Like my thoughts were moving through mud
- Trouble processing what others were saying and finding the words to respond
- On the verge of tears most of the time
- Crazy fatigue, feeling like I could nap at any second
- Overwhelmed by life, including the smallest things like making breakfast
- Slower memory recall
- Feeling like I was going to tip over, probably a symptom of my vision
- Feeling like my head was disconnected from my body
- Tingling on the left side of my face and down my left arm, this was a strange one
- In later times, tingling in fingertips and toes
- It was like I had to build in time to worry and have a long dialogue in my head because my mind was constantly racing, probably a symptom of being super cautious of how every choice affected my health
- Dizziness and heart rate spike when going from laying to sitting to standing
- Frustration because I felt alone, others around me expected me to be normal, and doctors told me 5 million different possible reasons and solutions
- Not comfortable driving longer than a mile
- Ringing in ears
- *an interesting one that I think was actually a sign of why brain fog* little red bumps on lower back and whitish bumps back of tongue that slowly disappeared as I felt better
- All symptoms worse on my period
- And more…